Dear Special Needs Moms,
Your kid may have a disease, a genetic condition, or something that requires visiting hospitals, doctors, and specialists often. You are the ones with children who need therapy. They may have speech, fine motor, or gross motor delays. I see you everywhere. I know who you are because I work with your children, with you, and alongside you. I also have many friends locally and online that share their daily walk as mom’s of kids with special conditions.
I am a special needs mom too. Our youngest son has Sensory Processing Disorder and Extreme Picking Eating. Alongside you I know what it is like to try to schedule appointments, get insurance approvals, not look at the medical bills because they are quite high, and rejoice when the treatment is received and your kid succeeds a bit.
We are trying to be Pollyanna. But, really we often feel like Cruella DeVille. We don’t want to steal puppies or anything, but we do feel like our hair is wild, our anger is high, and we are on a mission. We are on a mission to help our kids in anyway we can.
The mission is exhausting. We have no choice though. We can give up for a time, but the nagging feeling of knowing your kid needs help brings you back to the meetings, appointments, medications, and therapies that may help your kiddo feel better, achieve a new skill, or feel more confident. Perhaps we, too, want to feel more confident.
Mamas know this…I see you!
I saw the mom who was walking laps around the parking lot while her daughter was in ST and OT sessions on Tuesday. We moms (and some dads too) spend hours at offices waiting for our kids to receive therapy. We need a break. Sometimes a simple walk is the best we can do.
I saw the mom post on Instagram that her little girl sat for a minute unassisted for a minute yesterday. Her daughter is nearly four years old. Most four year old girls can run, play, jump, but for her…the joy comes in seeing her daughter sit by herself. Wheelchair living is a real deal for many people. She is a living breathing example of organ donation at its finest. She had a heart transplant her first year of life.
I saw the mom post about her son’s annual bone marrow biopsies for a rare disease he has. Bone marrow biopsy???? What???? That sounds awful and painful. This mom watches her son endure that pain every year. Her son is only about eight years old.
I saw the mom post a Facebook video of her son laying on the floor and strumming a guitar while singing a Matt Redman praise song along with the radio. Singing! Playing! Laying down, yes…but so amazing. Her son has Cerebral Palsy. He, too, is wheelchair bound. But, mama you are faithfully taking him to therapy, school, church, and letting him be a kid at home. Well done.
These are just four examples of the many stories out there. I am blessed to be a mom, a speech language pathologist, and a friend. When you see a mom/dad with a special needs child be kind. Hold the door for them. Smile at them. Encourage them. Help them. Celebrate with them. Pray for them. We need to see them not just as sad cases or heart string pulls…instead we need to join them in walking a tough journey. This is real life friends. This is motherhood and fatherhood to the max.
You are stronger than anyone.
Forgive me when I try to solve problems that are tough on my own.
Give me the willingness to lift my concerns to you, hear your whispered words of wisdom in Holy Spirit replies, and know that You have a plan for each and every adult and child that walks this Earth. You love unconditionally.
Help me to do the same. Help me to love my kids wholeheartedly. Help me to love other children that cross my path. Help us to see those with special needs as similar to us. We all have special needs. We all have talents and weaknesses. May we celebrate both today.